It's A Blessing To Breathe

Good Afternoon Everyone! Staying one step of ALS breathing episodes isn't easy, but I'm so determined I'll try anything. Yesterday morning I got up feeling good and within a half hour I had trouble breathing. As far as I know I wasn't anxious before hand, but within minutes I was very anxious. So, time for the Xanax only I didn't want to sleep all day so I took a Valium instead. About a half hour the Valium was working. Although, I still had trouble breathing I was calmer. I had the O2 running for a little more comfort. Around 11 I was doing better and it's a good thing because the sisters came for a visit. They're always in a good mood and ready for anything. Their mission for this visit was cleaning blinds and windows. Not an easy task because I have 12 windows in the sun room! Yikes! Bless their hearts always looking out for Lulu. I'm very thankful for all my sisters do for me. Guess I didn't realized how much they needed cleaning, but today I'm enjoying the brilliant sunshine coming through those clean windows! My breathing continued to be under control during their visit. In the late afternoon Fred's sisters stopped by for a short visit. Catheryn his oldest sister knew I had spent Friday in the ER so, they stopped in to see how I was doing. The evening went well with only one incident, but not as bad as the morning because I was staying on top with the anxiety medicine.

This morning I was dreading getting up remembering the episodes of yesterday. With my thinking cap on I thought if anxiety is causing my breathing to mess up...why not take my Valium in bed. That way I could lay a little longer while the medicine worked. Once in my recliner and settled I was surprised at how things were going. Also, I kept my neck brace on because yesterday I noticed it kept the high pressure alarm from going off every 5 minutes. Now, I sit here and all is good! I've only had the one Valium, no extra treatments, neck brace is off, and best of all NO OXYGEN!! A very good day so far!

I still don't know whats causing the anxiety but, until I do I'm starting my day with a Valium and neck brace. Whatever works....I'd like some feedback so, What do you think?

Busy As A Beaver!

My mind is thinking of all the things I want to do and have to do. My eyes can't keep up! LOL I hope everyone is having a fantastic Tuesday! My cousins Doris and Kay stopped by a few Mondays ago...after a weekend of fun with my other cousin Joette. They had so much fun that they want to take me next time. Woo-Hoo! So, at the end of September I'm off to the Charlestown Races! No, I won't bet the house, but do hear they have penny machines! LOL  For me it's not about gambling it's getting to spend quality time with family. I love to do that no matter where. Shirlie, Barbs and June will be going along, Hey....I need some adult supervision! Sorry Cuzs! LOL

It's a good thing I don't need the act of Congress to get the van rented. That's all taken care! I really hate the way they treat the disable as far as the expense goes. For two days of fun it's going to cost my cousins $400....RIDICLOUS!! Which brings me to my next wish and that is for a van. I have to different friends with bands that said they would play at a benefit for me. That's the other thing June and I working on. I value everyone's opinions so, do you think it's appropriate for me to do my own fundraiser? Having a van would mean so much to me. As you all known living with ALS and a fixed income isn't easy.

I welcome your feedback on this post. Thanks and a good evening or afternoon to all!!

Nascar At Indy!

Hello Race Fan!

This week we're at the Indy Motor Speedway. The place where the winner not only has a good pay day, but gets to KISS THE BRICKS!!! Hopefully, at the end of the day my favorite driver Jimmie Johnson will take his 4th win. Good Luck JJ!

My Second Post!

Good Mornin'!

I thought I'd ever say this, but it's going to be nice when we get into early fall. The summer here on the east coast has been too hot for my liking. That's not to say it's any better across the USA. The middle of the country has had brutal temperatures sometimes in the triple digits. Then when you add in the humidity it becomes unbearable! Today we brace for another hot one and my pool days are over! lol

I'm just getting this blog off the ground as I stated in my previous post. I hope to raise awareness for ALS, tell you about my journey, keep you updated on the latest news and most of all encourage you in whatever you're facing in your life. I apologize up front because I'm not the smartest cookie in the cookie jar, but what I am is honest, compassionate, determined, and some say even funny. I do love a good clean joke and believe laughter is the best medicine! If I ever get something wrong you may always let me know. I won't hit you over the head because I can't! lol  So, I hope you'll follow me as I journey on. Have a great weekend! Hugs!

What Am I Doing

I have a friend Dave Saunders who keeps telling me I should start a Blog. So, Dave I'm starting, but I have no idea what I'm doing. LOL Maybe, with help from you, my sons Scott, Sean and Step-daughter Kim, I'll succeed. My goal is letting followers know about Living With ALS, Raising Awareness and Inform. Please pray for me as I begin another chapter of Lulu's Story.